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At HIEM we have a portfolio of projects and programmes that aim to improve the lives of Neurodiverse People.
We are passionate about making sure that Neurodiverse People, experts by experience and their families/ carers have a space to be heard and that they are central in influencing change within the healthcare system. Our work supports both Neurodiverse People and professionals: including commissioners, clinicians, educators, social care & local authority practitioners, researchers and industry innovators.
On this page we use the term ‘Neurodiverse People’. We use this term to refer to people who have a neurodiverse diagnosis (including but not limited to Autism, ADHD and Tourette’s), people awaiting a neurodiversity assessment, and those who have not sought assessment, but who recognise themselves as being neurodiverse. We understand this may not be how you choose to refer to yourself/ people in your services.
Click here to go to HIEM’s ‘Digital Tools for Neurodiversity Platform’.
The new online platform helps you explore and compare digital tools that are available to support Neurodiverse People and associated healthcare services.
The platform began with an Adult ADHD focus but is continuously being expanded to encompass all-age, all neurodiversity. Tools range from clinical ‘front door solutions’ to self-management digital tools.
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Click here to find out more about how HIEM is supporting the identification, development, and adoption of digital technologies that help Neurodiverse People and associated healthcare services.
Click here to find out about the work HIEM is doing to make sure that Neurodiverse People, their families and carers, and other experts by experience are heard and included in decisions about the services they use.
Click here to find out about the work HIEM is doing to support healthcare systems in the East Midlands with their neurodiversity care pathways.
We have developed personas that represent people with ADHD. These personas can be used to support service improvement work. They do not replace involvement of people with lived experience but help to keep Neurodiverse People’s voice’s ‘in the room’ when they are not present.
We're currently validating these with stakeholders and people with lived experience, and look forward to sharing them soon.
The Hubs are spaces where experts by experience and professional experts can share their knowledge, experiences and views on how digital technology can best support the lives of Neurodiverse People and their services (Hubs 1 and 2). This learning is then shared with researchers and innovators to help improve the innovations of the future (Hub 3).
Last year HIEM ran Hubs to explore the digital needs of Adults with ADHD.
Read the analysis of the insight from the Adult ADHD Hubs 1 and 2 here.
Listen to the recording of the Adult ADHD Hub 3 here.
This year HIEM will be running hubs for Neurodiverse Young People. To find out more about the Hubs please contact Beth Askey This email address is being protected from spambots. You need JavaScript enabled to view it.
We have reviewed the available research on the use of digital technologies that support self-management within Adult ADHD pathways. We also worked with academic partners to identify and share learning from related areas of research. The review has now been completed and is available to download below.
Watch the recording of our evaluation researcher Sophie presenting the findings from the Mixed Methods Review.
Focus ADHD: Click here to find out more about our historic ‘Focus ADHD’ national programme to improve ADHD assessments in children & young people.
ORBIT 3: HIEM are supporting the Real-World Evaluation of ORBIT 'Online Remote Behavioural Intervention for Tics’. Look out for more information!
SuperPenguin: HIEM are supporting SuperPenguin through our GROW and Ignite programmes. SuperPenguin is a mobile app for parents/carers of children with stammer and a web platform for Speech and Language Therapists (SLTs); empowering both Speech and Language Therapists and families.
RECOGNeyes: HIEM are supporting RECOGNeyes through our Ignite programme. RECOGNeyes is a novel gaze-controlled computerised cognitive training (CCT) programme designed to help children with Attention Deficit/Hyperactivity Disorder (ADHD) by targeting impaired oculomotor control.
Click here to find out more about HIEM’s work ‘Helping people with a learning disability, at risk of behaviour that challenges, to avoid harm from psychotropic medicines.’
If you’re an innovator looking to share your work with us, a healthcare professional or somebody working in Neurodiversity services or somebody with lived experience looking to get involved with our week, please contact: This email address is being protected from spambots. You need JavaScript enabled to view it.